Crossing OverNarratives of Palliative Care

Crossing OverNarratives of Palliative Care

David Barnard, Anna M. Towers, Patricia Boston, and Yanna Lambrinidou

Print publication date: 2011

ISBN: 9780195123432

Publisher: Oxford University Press

Abstract

This book provides a unique view of patients, families, and their caregivers striving together to maintain comfort and hope in the face of incurable illness. The narratives weave together emotions, physical symptoms, spiritual concerns, and the stresses of family life, as well as the professional and personal challenges of providing hospice and palliative care. Based on a vast amount of participant observation and in-depth interviews, the book moves far beyond dry technical manuals for symptom control and tired clichés about death with dignity, to depict the sights, sounds, tastes, and smells of the daily in patients' homes and the palliative care unit. It captures the breathtaking diversity of people's aspirations and ideals as they face death, and the views of the professionals who care for them. Anger and fear, tenderness and reconciliation, jealousy and love, social support and falling through the cracks, unexpected courage and unshakable faith—all of these are part of facing death in late twentieth-century North America, and this book brings them to life in a portrait of the processes of giving and receiving palliative care.

Table of Contents

I The Narratives

3 Albert Hoffer: Bonds Through Thick and Thin

Narrated by Yanna Lambrinidou

4 Klara Bergman: Burdens from the Past

Narrated by Patricia Boston

6 Shamira Cook: “Who Am I?”

Narrated by Yanna Lambrinidou

8 Victor Sloski: “I Want to Die at Home”

Narrated by Patricia Boston

9 Leonard Patterson: Jagged Edges

Narrated by Yanna Lambrinidou

11 Sadie Fineman: A Question of Denial?

Narrated by Patricia Boston

16 Jasmine Claude: A Study in Faith

Narrated by Anna Towers

17 Katie Melnick: Living and Dying with God

Narrated by Yanna Lambrinidou

18 Susan Mulroney: A Private Matter

Narrated by Patricia Boston

20 Joey Court: Death of a Child

Narrated by Yanna Lambrinidou

II Working with the Narratives